Everyone deserves
the right to design a life they love.
Today’s life expectancy of a person with an intellectual disability is 60 years old—up 240% since 1983, when it was only 35.
And yet, most services for those with intellectual disabilities, like Down Syndrome, drop off when they’re just 22.
That leaves 40 years unaccounted for.
We want to change that.
We connected with adults living with disabilities, their families, caregivers, support coordinators, day program leaders, researchers, and so many others to hear about their lived experience.
It was clear, there is so much more that can be done to support this space AND there’s lots of excitement to come together to do it.
Here’s how we’re tackling the gap:
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Increasing Access to Resources
Compiling and sharing resources for adults with intellectual disabilities as they navigate life after the “support cliff” at 22.
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Co-Creating New Solutions
Imagining and supporting the creation of new solutions for adults with disabilities and their families and those that support them.
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Connecting Dots in the Ecosystem
Bringing people together (e.g., day program leaders, support coordinators) to share knowledge and strengthen relationships.
Our Current Projects
Resource Database
A database of government services, nonprofit orgs, and alternative community-driven supports providing services to adults with intellectual and developmental disabilities.
Quality of Life Framework
A research-informed toolkit based on 30+ studies that supports self-reflection and supports connection to resources across five life domains: health, financial stability, community, housing, and purpose.
Community Connects
A place-based community connect initiative that brings together families, caregivers, and service providers for peer learning, connection, and resource sharing.
Want to get involved?